On Chronic Illness and Justice by Ivy Helman

29662350_10155723099993089_8391051315166448776_oFor almost four years, I’ve been living with the long-term effects of an inner ear lesion.  The lesion is long gone but its side effects are not.  Throughout the day, I feel a combination of unsteadiness and sudden, unpredictable sensations of movement.  On better days, the unsteadiness is almost non-existent and the feelings of movement are minimal.  On worse days, I’m troubled with a type of brain fog that makes it hard to concentrate as well as disrupting unpredictable sensations of being on a boat that can’t pick one direction in which to move.  It’s frustrating, tiring and demoralizing.

Summer is the season of worse days.  There is really nothing I can do to feel better.  Even staying well-hydrated and taking it easy often doesn’t steady the boat.  So, instead, I often continue my life as normal.  Then, I lay in bed at night and hope sleep comes soon. Continue reading “On Chronic Illness and Justice by Ivy Helman”