Genetic Testing: The Ethical Implications of Expanded Newborn Testing – Who Benefits? (Part Two) by Michele Stopera Freyhauf

Freyhauf, Feminism, Religion, Durham, Old Testament, Blogger, Bible, Gender, Violence, Ursuline, John Carroll

With Angelina Jolie’s decision to have a double mastectomy due to a genetic test that revealed she carried the BRCa gene, the issue of genetic testing is in the forefront once again.  This is the second part of a three-part essay exploring genetic testing on newborns (part one and part two) and concludes with exploring personal choices and the psychological ramifications of genetic testing.

False Positives, Lack of Empirical Evidence, and Dangers in Expanded Newborn Screening

In the year 2000, most states only screened for about four conditions.   As of November 2008, most states adopted screening for the 29 recommended primary conditions and up to 25 secondary conditions (See President’s Council on Bioethics, “The Changing Moral Focus of Newborn Screening,” 36).    Since no federal mandate on newborn screening exists from state to state, this number varies due to the lack of understanding of the diseases or showing no proven benefit.   In fact, the twenty-five secondary conditions recommended  by the American College of Medical Genetics do not need urgent treatment in the newborn period or have no proven treatment (Also see Mary Ann Baily and Thomas J. Murray, “Ethics, Evidence. And Cost in Newborn Screening” Hastings Center Report (38, 2008), 28 ).

Then there is the multiplex technology of tandem mass spectrometry (MS/ MS) that can screen for over 40 “inborn errors of metabolism” from a single drop of blood (See President’s Council, “The Changing Moral Focus of Newborn Screening,” 9).  While this technology has reduced the numbers of false positives, it is still far from being reliable.  This is due to screening forBabySeq rare disorders on a population wide basis – about four million babies annually.  To illustrate this point, in 2007,  3,364,612 infants were screened for Maple Syrup Urine Disease (MSUD) in the United States and 1,249 tested positive. After retesting, only 18 cases confirmed a positive result (See President’s Council, “The Changing Moral Focus of Newborn Screening,” 14).  MSUD is a well-understood condition that shows some benefit for screening.  However, when we expand screening to add conditions that are not understood as well as mandate all newborns in the United States to be tested, false positives are likely to be in the tens of thousands (See also Beth Tarini, et al. “State Newborn  Screening in the Tandem Mass Spectrometry Era: More Tests, More False Positives” Pediatrics,  118 (2006), 448-456).

Continue reading “Genetic Testing: The Ethical Implications of Expanded Newborn Testing – Who Benefits? (Part Two) by Michele Stopera Freyhauf”

God Doesn’t Live Here Anymore: Gay Bars and the Growing Divide Between Sexuality and Spirituality by John Erickson

oes God exist within the LGBTQ community anymore or has the community itself abandoned God for all-night raves, dance clubs, alcohol, and hypersexualized and over commoditized fetishized forms of femininity and masculinity? Oftentimes, I find myself answering yes to the above questions. After surviving hate crime after hate crime and endless batches of newly elected conservative politicians hell bent on ignoring medical and social epidemic plaguing the very country they were elected to serve and protect, why would a community, oftentimes linked to sin itself, believe in a holy entity?

John Erickson, sports, coming out.My good friend and fellow Feminism and Religion Contributor Marie Cartier’s forthcoming book, Baby You Are My Religion: Women, Gay Bars, and Theology Before Stonewall argues that American butch-femme bar culture of the mid-20th Century should be interpreted as a sacred space.  Specifically, gay bars served as both communal and spiritual gathering spaces where butch-femme women were able to discover and explore not only their sexuality but also their spirituality.  An opus of an academic accomplishment based off of the amount of in-depth interviews she conducted, Professor Cartier explores lived religion in an area that has become all too common within the LGBTQ community: the bar

The Palms, the last local and only lesbian bar to be found in city of West Hollywood, CA is closing its doors and I can’t help but wonder where its patrons or parishioners will now go? Continue reading “God Doesn’t Live Here Anymore: Gay Bars and the Growing Divide Between Sexuality and Spirituality by John Erickson”

“Free-Speech or Speech-Free?” by Kile Jones

Kile Jones, atheist[This post is written in response to the chilling effect taking place in the U.K. since the Woolwich Attack.  It is also in response to the uses of the Public Order Act of 1986.]

In any “liberal democracy” that has constitutional protections for “free speech,” there will also be laws against “inciting violence,” “hate speech,” “threats,” “slander,” “libel,” “harassment,” and other “speech codes.”  This is because the government, or those who voted on the passing of such laws, worry about the potential threat un-regulated speech will have on the levels of violence and disharmony in society.  They worry about people being able to yell “fire!” in a theatre, which can cause (which is a key word here for legal reasons) physical harm, not being held liable for such speech.  As much as I understand these worries, I am of the opinion that the potential evils brought about by a lassez-faire approach to speech morally outweigh the evils of blasphemy laws and censorship. Continue reading ““Free-Speech or Speech-Free?” by Kile Jones”

Thanks for Coming (Out): Sexuality, Sports, and Spirituality by John Erickson

I have to be honest, Jason Collins’ admission that he was a homosexual, albeit brave, upset me. While coming out is an completely unique experience to every individual that does it, Jason Collins’ story was just another example of the rampant sexist and heteropatriarachal world that privileges male bodies and sexualities over women’s similar experiences. While I applaud Jason’s story and it’s timing, the first thing I asked to my colleagues was: Where was the hubbub over Sheryl Swoopes or Martina Navratilova?

John Erickson, sports, coming out. Like marking off items on a proverbial checklist, closeted LGBTQ individuals who exist within and outside of the world of professional sports, can recount the numerous things they struggle with in terms of their sexuality.  From fearing of the actual coming out process, dressing in their car or at home to avoid the subtle glances and whispers of individuals in the locker room, to wondering what coming out would mean not only for their game but also for their social and, if they choose, spiritual lives, closeted and out LGBTQ individuals within the multi-billion dollar professional sports industry must grapple with that age old question: what does it mean to be gay and open about it?

The Locker Room

I have to be honest, Jason Collins’ admission that he is a homosexual, albeit brave, upset me.  While I understand that coming out is an completely unique experience to every individual who does it, for me Jason Collins’ story was also an example of the rampant sexist and heteropatriarachal world that privileges male bodies and sexualities over those of women.  While I applaud Jason’s story and the timing, the first thing I asked to my colleagues was: where was the same hubbub over Sheryl Swoopes or Martina Navratilova? Continue reading “Thanks for Coming (Out): Sexuality, Sports, and Spirituality by John Erickson”

(Femen)ism? by Kile Jones

Kile Jones, atheistAs most of us are aware by now, there is a “feminist-sextremist” group from Ukraine called “Femen.”  This group has been very controversial by their public demonstrations of nudity, the words they paint on their bodies, and their explicit condemnations of political structures and organized religions.  They were started by Anna Hutsol in 2008 and have now spread throughout Europe and the Middle East.  The question I pose for this post is: Does Femen harness or hinder the power of the feminist critique?

Image from Konstantin Chernichkin/Reuters
Image from Konstantin Chernichkin/Reuters

Femen is precisely the kind of movement that pushes us in our understanding of feminism, the means by which it is best expressed, and the issues surrounding moral condemnation and religious sensitivity. Continue reading “(Femen)ism? by Kile Jones”

Protecting our Families: How the U.S. Falls Short in Protecting New Mothers (and Fathers) by Michele Stopera Freyhauf

Freyhauf, Feminism, Religion, Durham, Old Testament, Blogger, Bible, Gender, Violence, Ursuline, John CarrollLast weekend, I had the privilege of speaking at the National Convention for American Mothers, Inc. about motherhood in the 21st Century.  Because this is such a vital issue for mothers that live in the U.S. (since a large majority of families have two full-time wage earners), I thought it would be appropriate to share my speech here.  With the understanding that this a forum for feminism, I believe that this topic fits this forum because it continues to show how unequal the treatment is between the sexes – whether it is pay, position in employment, healthcare, education, or simply balancing the responsibilities of family/career.  For those that live in the United States, there is often a sense of exceptionalism, and as I clearly demonstrate in this speech, we are certainly a far cry from being role models that when it comes to protecting mothers (whether by birth or adoption) and families.

As a side note:  One topic that was not explored, due to lack of data, is how maternity/paternity leave impacts same sex couples who become new parents – I have to believe that this is a topic to also examine (and I am would encourage any feedback here).  

Recently the United States ranked 25 out of 165 countries for being the best place to live if you are a mother.  This number is up from 31 a year ago and places us between Belarus and the Czech Republic.

You may be asking yourself, Why isn’t the United States in the top five or even in the top ten? The answer to that question becomes evident once we examine how that determination is made. The categories examined are:

  • Mother’s education;
  • Child’s Health;
  • Economic status;
  • The Election of women to government office;
  • Breast feeding programs.  In the United States 75% of mothers breastfeed their babies, 35% continue to breastfeed after six weeks. The number shrinks because mothers usually return to work and find it difficult to to pump at the office;
  • Maternal death rate is another factor, which stunned me when I found out that the US has the highest maternal death rate of any industrialized nation. Approximately 1 in 2,100 women are at risk of dying during child birth;
  • Infant death rates is another category.  Infant deaths are estimated to be 8 per 1000 births – a number that throws us behind 40 other countries;

Feminism and Football By Marcia W. Mount Shoop

Marcia headshot“How did race and privilege affect the NCAA investigation of the football program at University of North Carolina?”

This was the question a student posed to me recently when I gave a Skype lecture to a Sports Ethics class at the University of Washington’s Center for Leadership in Athletics

I am going to take a wild guess (and I may be wrong), and assume that most readers of the FAR blog don’t know much about the NCAA investigation of the UNC football program.   I have outed myself on this blog before—I am more than just a feminist theologian; I am also a football coach’s wife.  Lots of people wonder how I manage to pull that off and still look at myself in the mirror.  That’s a complicated question.  I am finding that the challenges presented by our experience at UNC are creating more and more space for the feminist and the coach’s wife to find a common purpose.  Which brings us back to the question at hand—race and privilege and how it played into the football investigation at UNC.

You may want to investigate the many details of this investigation, but I would like to invite this feminist community to see what you think about this question of privilege in particular.   I will provide just a few factual statements for you all.  You tell me if you can think of ways that race and privilege may have been at work to the detriment of certain groups in this situation.  Continue reading “Feminism and Football By Marcia W. Mount Shoop”

Grief Beyond Belief and Rebecca Hensler by Kile Jones

Kile Jones, atheistIn my last post, “A Pro-Science, Skeptical Woman Speaks” I interviewed a woman with whom I share many views in common.  One of my goals here at Feminism and Religion is to introduce different secular, atheistic, liberal feminists who share many of the same ethical views as regular contributors and readers, but not the same “religious” or “spiritual” ideas.  In this post I examine an online support network for unbelievers, Grief Beyond Belief, and ask a few questions to its founder, Rebecca Hensler.

I met Rebecca in February in San Francisco while on a visit I made to meet with the Unitarian Universalist Association in regards to my ordination.  My girlfriend and I met Rebecca in North Beach, San Francisco for dinner and drinks.  I experienced her as a compassionate, friendly, and genuine person.  Her experiences and insights inspired me to think more about the role of grief and pain among unbelievers.  I mean, atheists cry, agnostics experience loss, skeptics lose family members, and we do it all without a “God” or “spirit” to help us.  And if we were to meet C.S. Lewis, we would make

sure to exclaim, “No…pain is not some megaphone for God to rouse a deaf world.”

R Hensler

Why did you start Grief Beyond Belief?

The original idea was born of my own grief.  After my son died, I found a group in which to share comfort and compassion with other grieving parents: The Compassionate Friends, a mainstream parental grief support organization with a strong online presence.  It was so close to exactly what I needed, but I frequently felt alienated by the religious and spiritual content — not just the offers of comfort that depended on beliefs I do not hold, but the assumption that everyone there held some sort of belief in life after death. And the assumption, so common in mainstream grief support, that even if I am not the same religion as you are, I have a religion, and I believe in some sort of afterlife was equally alienating and hurtful. Continue reading “Grief Beyond Belief and Rebecca Hensler by Kile Jones”

Marriage as a Commodity (Satisfaction Guaranteed) by Michele Stopera Freyhauf

Freyhauf, Feminism, Religion, Durham, Old Testament, Blogger, Bible, Gender, Violence, Ursuline, John CarrollThis Saturday I will be presenting a paper about Cyberbrides at the United Nations Commission on the Status of Women.  While my focus for that paper is the impact on mothers and families, my research also revealed how some Cyberbrides (or Mail-Order Brides) are selected from internet catalogues with “satisfaction guaranteed” and how “International Marriage Broker” may be a cloak hiding the agencies’ involvement with human trafficking.

Cyberbrides are essentially mail-order brides, but like pen pals, they can chat and exchange pictures on the Internet and interact through video or instant chat.  There are almost 2.9 million website matches that turn up when Google-ing “Mail-Order Brides” within 19 seconds of pressing the “return” button. With the low cost of social media, a new venue to market and display this “commodity” is available.  Presently,  about 30 Facebook sites exist that advertise “Mail-OrderBrides. Continue reading “Marriage as a Commodity (Satisfaction Guaranteed) by Michele Stopera Freyhauf”

Second Class Rape Victims: Rape Hierarchy and Gender Conflict

Deconstructing masculinity isn’t the key to solving social, sexual, and domestic violence across the world but it is a step worth taking when attempting to engage men in affecting change to stop these violent actions since men, statistically are the perpetrators of such crimes that both cause such outcry as well as perpetual silence.

johnThe most disturbing part of the 2006 documentary Deliver Us from Evil isn’t the fact that Father Oliver O’Grady is rewarded by the Catholic Church with a new congregation in Ireland after his short stint in prison for the rape of dozens of children in the 1970s, but rather the hierarchy of gendered victimization which is often created throughout the various rape cases that are both reported and unreported throughout history.

I am often troubled by the ways in which rape cases are discussed and deconstructed via mediums such as blogs, online communities, social media networks, the news, and popular culture.  No series of events troubled me more than the Jerry Sandusky trial, but more importantly, the ways in which the young boys and adult men who were subjected to Sandusky’s abuse quickly overshadowed the other rape cases that are reported on a daily basis, specifically those involving young girls and women. Continue reading “Second Class Rape Victims: Rape Hierarchy and Gender Conflict”